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The Role of Specialised Medical ID Expertise in Care Consultations for People with Intellectual Disabilities: Experiences of Caregivers and Patients
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Marian E. J. Breuer; Esther J. Bakker-van Gijssel; Tim Pelle; Jenneken Naaldenberg; Geraline L. Leusink – Journal of Applied Research in Intellectual Disabilities, 2025
Background: This study aims to explore patients' and their caregivers' experiences with and expectations of a medical consultation with a specialised ID physician at an outpatient ID practice. Methods: Fifteen semi-structured interviews were conducted with patients and their caregivers. Interview topics concerned (1) ID physician's knowledge and…
Descriptors: Intellectual Disability, Specialization, Caregivers, Physician Patient Relationship
Where Care Converges: Uncovering Shared Experiences of Parents and Service Providers for Adults with Intellectual Disabilities in Times of Austerity
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Rachel Abigail Harrison; Jill Bradshaw; Michelle McCarthy – Journal of Applied Research in Intellectual Disabilities, 2025
Background: Since the introduction of austerity measures in 2008, funding for care, welfare, services and support systems in the United Kingdom has been reduced. There is little research that explores the experiences of parents of adults with intellectual disabilities and service providers regarding care, relationships and social networks in times…
Descriptors: Adults, Intellectual Disability, Economic Climate, Budgeting
'It's Really Who They Are and What They Want': Staff Perspectives on Supporting Autonomy for Autistic Adults with Intellectual Disabilities
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Jackie Ryan; Heather M. Brown; Anne Borden; Christina Devlin; Adam Kedmy; Austin Lee; David B. Nicholas; Sandy Thompson-Hodgetts – Journal of Applied Research in Intellectual Disabilities, 2025
Background: Autonomy is a crucial component of self-determination, yet it is limited for Autistic individuals, especially those with co-occurring intellectual disabilities. We explored how professionals supported Autistic people with intellectual disabilities' autonomy. Materials and Methods: This qualitative study used a community-based…
Descriptors: Personal Autonomy, Adults, Self Determination, Autism Spectrum Disorders