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Paid Carers' Understanding and Experiences of Meaningful Involvement in Bereavement for People with Intellectual Disability When a Significant Other Is Dying
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Hedayioglu, Julie; Marsden, Sue; Sackree, Amy; Oliver, David – Journal of Applied Research in Intellectual Disabilities, 2022
Background: Wider communication about death and dying for those with intellectual disabilities has been highlighted as being of key importance. Objective: To gain the perspective of paid carers based in residential homes about meaningfully supporting individuals with intellectual disabilities in the bereavement process. Methods: Semi-structured…
Descriptors: Caregivers, Residential Care, Group Homes, Intellectual Disability
People with Intellectual Disabilities at the End of Their Lives: The Case for Specialist Care?
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Forrester-Jones, Rachel; Beecham, Jennifer K.; Barnoux, Magali; Oliver, David; Couch, Elyse; Bates, Claire – Journal of Applied Research in Intellectual Disabilities, 2017
Background: People with intellectual disabilities have a shorter life expectancy, but healthcare improvements mean that they are beginning to live longer, with associated health difficulties. This means that there is an urgent need to focus research on ageing as well as end-of-life care. This study aimed to explore a specialist intellectual…
Descriptors: Intellectual Disability, Aging (Individuals), Death, Older Adults