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Direct linkMeghana Wadnerkar Kamble; Jen Dawe; Karen Bunning – Journal of Applied Research in Intellectual Disabilities, 2025
Background: There is limited evidence exploring sibling's perspective in Prader-Willi syndrome research. Objectives: To investigate the experiences and support needs of the siblings of individuals with Prader-Willi syndrome. Methods: This two-stage qualitative study involved siblings aged 11 years onwards (n = 11) and parents (n = 8). Stage 1…
Descriptors: Genetic Disorders, Intellectual Disability, Siblings, Parents
Fisher, Marisa H.; Lough, Emma; Griffin, Megan M.; Lane, Laurel A. – Journal of Mental Health Research in Intellectual Disabilities, 2017
Background: Individuals with intellectual disability experience high rates of bullying, but it is not known how people with specific syndromes, such as Williams syndrome (WS), experience and respond to bullying. Given their behavioral profile, including hypersociability and heightened anxiety, and their risk for experiencing other forms of…
Descriptors: Intellectual Disability, Genetic Disorders, Bullying, At Risk Persons
