Background: Feeding difficulties, including aspiration risk, are common in children with Down syndrome. Identifying factors affecting feeding modality is crucial. Method: This cross-sectional study included 335 children with Down syndrome (aged 4-12 years; mean 5.2). Feeding was assessed using the Functional Oral Intake Scale (FOIS), the Screening…

Background: This study aimed to assess the level of health-related quality of life, the occurrence of behavioural and emotional problems, and the association between those among 10-11-year-old students with mild intellectual disability who are studying in mainstream schools and separate special schools. Methods: The study included the caregivers…

Background: Behavioural problems in individuals with intellectual disabilities have a negative impact on them. Limited assessment measures exist in Spain. This study aimed to validate the Behavior Problems Inventory--Short Form (BPI-S) in the Spanish population by examining its psychometric properties and factorial structures. Method: This study…

Background: Engagement of individuals with an intellectual disability and their caregivers in health care has been highlighted as an essential factor in developing services that better meet client needs; however, few studies have focused on the engagement of individuals with a dual diagnosis (intellectual disability co-occurring with a mental…

Background: This review aimed to synthesise the literature about interventions for parents of adolescents with intellectual disability, including parental experience of receiving interventions and intervention effectiveness. Methods: Eligible interventions aimed to improve parenting skills and/or parent-adolescent relationships, adolescent…

Background: People with neurodevelopmental disabilities are frequently prescribed or administered psychotropic medication, particularly to manage behaviours of concern. Reducing inappropriate psychotropic use has been the target of international research and policy for several decades. Methods: Six electronic databases were searched for…

Background: There are increasing numbers of ageing family carers of older (40+) adults with intellectual disabilities who convey behaviours that challenge others in the UK. It is important to understand the needs and experiences of these carers as they support their older family member to transition to different care contexts. Method: A rapid…

Background: Children with neurodisabilities, including those with intellectual and developmental disabilities (IDD), autism and other complex needs, frequently experience sleep disturbances, impacting their health, behaviour and caregiver well-being. This study evaluates the effectiveness of Cubby Beds, sensory safety beds designed to improve…

Background: We aimed to identify key factors in implementing and adhering to positive behaviour support (PBS), provided by frontline staff, targeting challenging behaviours of people with intellectual disabilities living in residential group homes. Method: Using semi-structured interviews with 12 frontline staff members, we collected perspectives…

Background: Since the introduction of austerity measures in 2008, funding for care, welfare, services and support systems in the United Kingdom has been reduced. There is little research that explores the experiences of parents of adults with intellectual disabilities and service providers regarding care, relationships and social networks in times…

Background: Mucopolysaccharidosis type III (MPS III) is a rare lysosomal storage disease with systemic complications. This scoping review aimed to synthesise evidence regarding methods to diagnose and monitor MPS III. Methods: We searched 10 databases for English and Spanish citations published from 2017 to 2022. Our study focused on human-based…

Background: During the COVID-19 pandemic we implemented a partially online music intervention to examine the feasibility, experiences and short-term outcomes on the challenging behaviour and well-being of adults with intellectual disabilities. Method: This mixed-methods study included 10 participants with mild or moderate intellectual disabilities…

Background: Children with severe developmental disabilities are frequently excluded from research, and little is known about their quality of life (QoL). Using a mixed-methods approach, this study examined relationships between school factors and QoL for these children and their families. Method: 171 parents of children with severe developmental…

Background: Adults with intellectual disability, especially those with Down syndrome, are at increased risk of dementia. Whilst memory decline is often considered the earliest symptom, emerging research indicates decline in language, executive function, and non-cognitive domains may also occur early, potentially before memory changes. Method: A…