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Direct linkShin Ying Chu; Jaehoon Lee; Dini Sofea Binti Zamsyari; Chun Hong Gan; Pui Juan Woi; Agnes Shu Sze Chong; Maria Garraffa; Ling-Yi Lin – Journal of Applied Research in Intellectual Disabilities, 2025
Background: To examine the relationship between affiliate stigma, stress and perceived quality of life amongst parents of children with Down syndrome (DS). Method: Seventy-eight parents of children with DS completed the Affiliate Stigma Scale (ASS), Caregiver Burden Inventory (CBI) and Care-related Quality of Life (CarerQol) scales. Results:…
Descriptors: Attitudes toward Disabilities, Social Bias, Stress Variables, Quality of Life
Tommie Forslund; Sandra Melander; Lydia Springer; Laila Dahlström Stolpe; Karin Jöreskog – Journal of Applied Research in Intellectual Disabilities, 2025
Background: Parents with intellectual disability and their children are entitled to adapted support, but practitioners lack knowledge, have scarce access to adapted methods, and work in siloed organisations with limited resources. SUF resource centre was therefore formed, in Region Uppsala, Sweden, to support families headed by parents with…
Descriptors: Parents with Disabilities, Intellectual Disability, Resources, Allied Health Personnel
Kasey Fullwood; Andrew Collaro; Lachlan Power; Jasneek Chawla – Journal of Applied Research in Intellectual Disabilities, 2025
Introduction: Children with Down Syndrome are more likely to experience sleep issues throughout their life compared to typically developing children. Sleep difficulties also affect caregivers, who are at increased risk of sleep disturbances, mood disturbances and poorer wellbeing. However, the impact of poor sleep in this cohort of children on…
Descriptors: Down Syndrome, Children, Sleep, Quality of Life
Siméon T. A. Lahaije; Jorien Luijkx; Aly Waninge; Annette A. J. van der Putten – Journal of Applied Research in Intellectual Disabilities, 2025
Background: Families with a child with profound intellectual and multiple disabilities have to manage the pervasive support needs of their child, which is a complex task. By properly supporting them, we can ensure these families live a positive and meaningful life. Method: A product to support these families was developed using the method of…
Descriptors: Curriculum Development, Online Courses, Training, Government Employees
