Background: Children and young people with life-limiting conditions in palliative care often have some degree of intellectual disability. Literature about death communication with this patient group is limited. This study aimed to explore professionals' perspectives on death communication with children and young people with intellectual…

Having conversations about death and dying can be very difficult to initiate and engage in with others. The following activity, based on the card game The Death Deck, was designed to encourage students to engage with others about difficult conversations surrounding death and dying. The activity provides students with questions and prompts that…

Background: This study reports the process evaluation of the In-Dialogue conversation aid to facilitate shared decision-making with people with intellectual disabilities in the palliative phase. Methods: Training for In-Dialogue was evaluated by 53 support staff members through questionnaires. The use of In-Dialogue in four residential care…

Background: Wider communication about death and dying for those with intellectual disabilities has been highlighted as being of key importance. Objective: To gain the perspective of paid carers based in residential homes about meaningfully supporting individuals with intellectual disabilities in the bereavement process. Methods: Semi-structured…

Given the legacy of John Bowlby, Attachment theory has often portrayed separation from a caregiver as likely to provoke protest, despair, and ultimately detachment in infants and young children. Indeed, the emotional challenge of separation is built into a key measurement tool of Attachment theory, the Strange Situation. However, James Robertson,…