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Direct linkCaitlin Gray; Helen Leonard; Kingsley Wong; Sally Reed; Kate Schmidt; Rachel Skoss; Jianghong Li; Alison Salt; Jenny Bourke; Emma J. Glasson – Journal of Intellectual & Developmental Disability, 2024
Background: Siblings of children with intellectual disability have unique family experiences, varying by type of disability. Methods: Parents of children with Down syndrome (156) or with Rett syndrome (149) completed questionnaires relating to sibling advantages and disadvantages, experiences of holidays and recreation, and perceived availability…
Descriptors: Intellectual Disability, Children, Genetic Disorders, Siblings
den Boer, M. C.; Voermans, M. A. C.; Embregts, P. J. C. M. – Journal of Intellectual & Developmental Disability, 2023
Background: Mothers of young adults with profound intellectual and multiple disabilities that live at home are less likely to be on the radar of formal services. We explored the experience of these mothers over the course of the COVID-19 pandemic. Methods: A qualitative study using three case studies. Transcripts were analysed using Interpretative…
Descriptors: Mothers, Young Adults, Severe Intellectual Disability, Multiple Disabilities
Eunyoung Son; Donghyun Ahn; Johanna Inhyang Kim; Sojung Kim – Journal of Intellectual & Developmental Disability, 2024
Background: Limited data exist on problematic sexual behaviour (PSB) in youth with developmental disabilities in South Korea. Method: Sixty-one parents of children with intellectual disabilities or autism spectrum disorder (aged 13-30) reported children's PSB and emotional, behavioural, cognitive, and interpersonal factors. The frequency of PSB in…
Descriptors: Foreign Countries, Behavior Problems, Sexuality, Developmental Disabilities
Langdon, Peter E.; Marczak, Magdalena; Clifford, Clair; Willner, Paul – Journal of Intellectual & Developmental Disability, 2022
Objectives: To characterise the changes at work experienced by psychologists working with people with intellectual disabilities during the pandemic and whether these changes, stressors and aspects of working life were associated with mental wellbeing and occupational stress. Methods: Ninety-seven psychologists completed an online survey. Free text…
Descriptors: Foreign Countries, Occupational Safety and Health, Work Environment, Stress Management
Sangha, Simrit; Anderson, Joanna K.; Burn, Anne-Marie – Journal of Intellectual & Developmental Disability, 2023
Background: Despite a growing body of literature investigating the impact of disabilities on family relationships, the experiences of ethnic minorities remain underexplored. Method: Semi-structured online interviews were conducted with eight young people (aged 18-28 years) with disabled sibling(s) within an immigrant family to understand how this…
Descriptors: Foreign Countries, Disabilities, Young Adults, Siblings
Boursier, Valentina; Gioia, Francesca; Coppola, Federica; Schimmenti, Adriano – Journal of Intellectual & Developmental Disability, 2022
Parents of children with special healthcare needs search the Internet to learn about and share health-related information. Indeed, online communities (OCs) often increase knowledge and skills, decreasing feelings of isolation and distress. The current study explored the content and functioning of an Italian OC comprising parents of children with…
Descriptors: Foreign Countries, Parents, Access to Information, Information Dissemination
