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Michelle Iffland; Mikaela Jorgensen; Donna Gillies – British Journal of Learning Disabilities, 2024
Background: People with intellectual disabilities are at much higher risk of preventable deaths compared to the general community. However, studies identifying the cause of death in people with intellectual disability are generally based on one primary cause which is frequently attributed to the person's disability. Therefore, the aim of this…
Descriptors: Foreign Countries, Intellectual Disability, Learning Disabilities, Death
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Laura Broad; Christine Wee; Anthony D. Harries – British Journal of Learning Disabilities, 2024
Background: People with intellectual disability frequently have eating, drinking and swallowing difficulties (dysphagia) and are at greater risk of premature mortality, particularly from aspiration and respiratory infections. The insertion of a percutaneous endoscopic gastrostomy (PEG), as part of a multidisciplinary management plan, may help to…
Descriptors: Mortality Rate, Intellectual Disability, Eating Disorders, Drinking
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Pauline Heslop; Emily Lauer – British Journal of Learning Disabilities, 2024
Background: We now have sufficient evidence demonstrating inequalities in specific avoidable causes of death for adults with intellectual disability compared to their peers without intellectual disability. Apart from COVID-19, the largest differentials that disadvantage people with intellectual disability are in relation to pneumonia, aspiration…
Descriptors: Adults, Intellectual Disability, Death, At Risk Persons
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Grant, Nerissa; Hewitt, Olivia; Ash, Katie; Knott, Fiona – British Journal of Learning Disabilities, 2022
Background: Sepsis is a common cause of death within the general population and the third most common cause of death for people with a learning disability, suggesting an increased vulnerability or different trajectory within this population. Despite this, there is currently no research into the direct lived experiences of people with a learning…
Descriptors: Death, Disabilities, At Risk Persons, Adults