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Good Life in Old Age: Qualitative Interviews about Ageing with Older Adults with Mild Intellectual Disability, Prior to an Educational Intervention
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Marianne Holmgren; Gerd Ahlström – Journal of Intellectual Disabilities, 2024
Background: Knowledge about ageing from the perspective of people with intellectual disability is extremely scarce, which means a lack of evidence-based interventions for healthy ageing adjusted to their needs. Aim: To investigate how people with intellectual disability experience ageing, prior to an educational intervention. Methods: Twenty-six…
Descriptors: Older Adults, Aging (Individuals), Mild Intellectual Disability, Social Isolation
Analysis of an Australian Death Database of People with Intellectual Disability Living out of the Family Home: Place of Death and Associated Variables
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Michele Y. Wiese; Roger J. Stancliffe; Seeta Durvasula; Daniel W. Piepers; Nathan J. Wilson – Journal of Intellectual Disabilities, 2024
This study reports on a five-year data set about the deaths of 599 individuals in New South Wales Australia, who at the time of their death were living in out-of-home care. Analysis aimed to: i) gain a clearer understanding of place of death for people with intellectual disability; and ii) identify and analyse associated variables to investigate…
Descriptors: Intellectual Disability, Family Environment, Death, Content Analysis
Maximising Engagement and Participation of Intellectual Disability Staff in Research: Insights from Conducting a UK-Wide Survey
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Lam, Claire Kar Kei; Bernal, Jane; Finlayson, Janet; Todd, Stuart; Taggart, Laurence; Boaz, Annette; Tuffrey-Wijne, Irene – Journal of Intellectual Disabilities, 2021
Aim: This article explores ways of maximising engagement of intellectual disability staff as research participants, research advisers and research implementers. Method: The authors describe and reflect on a three-phased strategy in recruiting front-line staff (n = 690) working for intellectual disability service providers (n = 25) to participate…
Descriptors: Intellectual Disability, Foreign Countries, National Surveys, Professional Personnel
Place of Death of People with Intellectual Disabilities: An Exploratory Study of Death and Dying within Community Disability Service Settings
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Todd, Stuart; Brandford, Sharon; Worth, Rhian; Shearn, Julia; Bernal, Jane – Journal of Intellectual Disabilities, 2021
This article describes an exploratory study of deaths of people with intellectual disabilities (IDs) that had occurred in group homes managed by an ID service provider in Australasia. Such settings are increasingly recognised as places for both living and dying. Little is known about the extent to which they encounter the death of a person with ID…
Descriptors: Intellectual Disability, Death, Group Homes, Age Differences
Caring for a Child with a Life Limiting Condition: The Experiences of Nurses in an Intellectual Disability Service Provider
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Connor, Eilis O.; Corcoran, Yvonne – Journal of Intellectual Disabilities, 2022
This study elicited the experiences of nurses caring for children with life-limiting conditions and their family, within a community based intellectual disability service. A qualitative descriptive research approach was adopted where purposeful sampling recruited 10 participants. Data was collected using one to one semi-structured interviews and…
Descriptors: Nurses, Children, Intellectual Disability, At Risk Persons
Creating Person-Centred Support for People with Intellectual Disabilities at the End of Life: An Australian Qualitative Study of Unmet Needs and Strategies
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McNamara, Beverley; Same, Anne; Rosenwax, Lorna – Journal of Intellectual Disabilities, 2020
Background: People with intellectual disabilities at the end of life are at risk of receiving inadequate and inequitable end-of-life care. This study explores their unmet needs, opportunities for person-centred care and experiences of health service use. Methods: Qualitative interviews with 26 experienced health professionals and carers were used…
Descriptors: Foreign Countries, Intellectual Disability, Self Determination, Individual Power